'Everybody's journey is different': Meet the B.C. man who started Canada's first vitiligo support group
![Omar Sharife Omar Sharife is a co-founder of Vitiligo Voices Canada. June is Vitiligo awareness month and June 25 is World Vitiligo Day.](/content/dam/ctvnews/en/images/2024/6/23/omar-sharife-1-6938099-1719185077474.jpg)
A B.C. model and actor is helping people with vitiligo come together and share their stories with a support group he co-founded.
Vitiligo is a condition that causes skin to lose its pigment in patches, which happens when melanin-producing cells die or stop working. An estimated 0.5 to 2 per cent of the world’s population has vitiligo, according to the Canadian Dermatology Association.
Omar Sharife told CTV News living with the condition can be especially challenging if there’s nobody to talk to about it.
“It’s essentially a condition that changes your identity,” he said. “There’s a lot of mental health issues and challenges when you’re established as an individual and then your identity and skin colour is changing beyond your control.”
Sharife said he’s moved into a state of greater self-acceptance over the last few years because he connected with other people who have vitiligo, and finally heard other people share the feelings he’s had for decades. That’s why Sharife helped create Vitiligo Voices Canada at the beginning of this year, which calls itself the first support group of its kind in the country.
“There are a number of really great support groups across the U.S., but Canada is really lacking in that sort of support group or connection,” he said.
Vitiligo Voices Canada hosts a regular virtual drop-in for people to share their experiences. And since June is vitiligo awareness month, the group has been posting personal stories on its social media to help get word out.
“It’s incredible the amount of help that it gives people, and it’s a big part of people’s journey wanting to just speak out loud the truth of what they’re going through,” Sharife said.
He adds that vitiligo affects everyone differently—some people might get one spot, while others’ skin will change dramatically, and some people develop it at a young age while others get it when they’re older. And people have differing levels of acceptance of their condition. “Everybody’s journey is different,” he said.
That being said, Sharife’s message for Canadians is to be sensitive and aware that everybody is at a different stage of their vitiligo journey—something to keep in mind on Tuesday June 25, which is World Vitiligo Day.
Several landmarks will light up in purple for the international awareness day, including BC Place, Science world and the Vancouver Convention Centre. Vancouver City Hall will be lit up in purple on Wednesday.
CTVNews.ca Top Stories
![](https://www.ctvnews.ca/polopoly_fs/1.6944496.1719545086!/httpImage/image.jpg_gen/derivatives/landscape_800/image.jpg)
A halting Biden tries to confront Trump at debate but stirs Democratic anxiety about his candidacy
A raspy, sometimes halting U.S. President Joe Biden repeatedly sought to confront Donald Trump in their first debate ahead of the November election, as his Republican rival countered Biden’s criticism by leaning into falsehoods about the economy, illegal immigration and his role in the Jan. 6, 2021, Capitol insurrection.
Analysis of the CNN Presidential Debate between Joe Biden and Donald Trump
U.S. President Joe Biden and former president Donald Trump went head-to-head in the first of two planned presidential debates.
FACT FOCUS: Here's a look at some of the false claims made during Biden and Trump's first debate
President Joe Biden and former President Donald Trump traded barbs and a variety of false and misleading information as they faced off in their first debate of the 2024 election.
Fines related to neighbour's 443 noise complaints at centre of B.C. dispute
A B.C. condo owner who was fined tens of thousands of dollars over hundreds of noise complaints made by his downstairs neighbour was partially successful in having the penalties overturned.
EXCLUSIVE Canadian lawyers play key role in money laundering, says financial intelligence report
A report by Canada's financial watchdog obtained by the Investigative Journalism Foundation working in collaboration with CTV News looked at Canadian lawyers' potential role in money laundering schemes, including those by organized crime groups like biker gangs and drug cartels.
Legal action coming to recover COVID benefit overpayments
The Canada Revenue Agency says it is ramping up efforts to recover overpayments of pandemic-related benefits.
'Hanging on for her life': Sask. family desperate to bring home sick niece from Philippines
For half a decade, a Saskatoon family has been trying to bring their orphaned niece to Canada, they say now it’s a matter of life or death.
'No additional flights will be cancelled': WestJet avoids strike as feds order binding arbitration
The federal government ordered binding arbitration in the labour dispute between WestJet and the Aircraft Mechanics Fraternal Association (AMFA) on Thursday.
Ottawa police warn residents to avoid Facebook Marketplace when looking for a place to rent
Ottawa police are going as far as to tell people to stay away from Facebook Marketplace altogether when looking for a place to rent because of the prevalence of scams.